I forgot to make my weekly #LongCOVID / #cancer update.
My GFM hit the goal I needed to be able to restart my business! YAY!
But then I got the news that my HC premium is going up to $872 😭
🆘 Help 🚨
C/V: TinuWrites
ko-fi.com/TinuWrites
#MutualAidRequest
Before I go on, I would like to ask that if you have a thread or a #HealthCareCrowdfund?
Reply with your story.
QT your own thread.
I’ll share as many as I can. The purpose is also for people to see how MASSIVE this problem is.
Please don’t forget paylinks.
Mar 23, 2023 · 10:17 PM UTC
Please if you need other types of help, READ THE PGE IN MY PROFILE.. I will be hiding replies and/or blocking before you get any views.
I want to help as many people as possible and that is WHY those boundaries exist.
BRB want to post this so people can reply while I’m writing.
@RepUnderwood maybe there are people here who can illustrate the need for your bill.
No pressure to RT/reply . Just … thank you. We’re already organizing maybe we can form a coalition?
Normally here I would link to my backstory. Instead I’m linking to links of my backstory.
Because the tweet I initially made stopped counting at 69 QTs and won’t go up to link my shared knowledge, loved experience and pain.
#LongCOVID
#birdchanfail
x.com/search?q=twitter.com%2…
The whole time I have been sick in my life I have struggled with health insurance.
In the late 90s, I got help desk jobs paying what is now $67k after inflation.
With those jobs came health insurance. & would cover everything except what were called #PreExistingConditions.
That phrase means that if the health insurance company could find
any record
of you having so much as a back ache before you tried to get treatment?
They could reject your claim and call you a scammer.
Gaslight you into thinking you have a psychosomatic illness.
Does that treacherous behavior sound familiar?
Because this is what the #ACA was supposed to stop.
And it’s back.
It was never perfect but #Obamacare kicked in just in time for me to be treated for cancer.
I paid cash for everything I could not cover.
And for a decade the only way I could make money was to create digital items of value and accept donations for my general work.
Because if you take the money as self employment you had to pay taxes on that money.
Barely enough to scrape by. The ACA saved my life when I couldn’t take more than one client with cancer.
My client kept me on until I missed a meeting. I knew they were waiting for an excuse to dismiss me but not the main contractor.
But it was the only way I could make money in bed, enough to cover bills until I went essentially bankrupt.
The game for how the health insurance industry gets to violate you at the most vulnerable time of your life has changed.
They just do it differently now.
The call a rise in addiction that has been steady and proportional to the population an #OpioidCrisis when really
It’s just an excuse not to pay for our pain meds and switch us to cheaper drugs that only help 15% of us
And not as well.
Or in the case of Red states like Texas that won’t accept the #MedicaidExpansion the #ACA enabled?
They manipulate @HealthCareGov’s system to tell you are are both too rich and too poor to be covered.
Here’s a thread from the day I fell back into a depression.
OK @HealthCareGov riddle me this. Because this is the second year this has happened and I have cancer.
I told you how much I make and got approved for healthcare.
Then after I turn in my proof, which turns out to be the same slightly more MY COST OF CIVERAGE GOES UP $500.
Because this scenario is a rerun.
Last year, after I submitted proof of not being able to work,
& thus earning abject poverty self employment outside donations
they took the $35 plan with a $600 deductible I was on,
and changed it to $535 and a $6000 deductible.
You might remember how last August I went off the cancer meds that were freezing the cancer in place
Thus saving my life. I literally had to let myself die for a month and hope I could raise the money in time to stop it.
Stage 3 became 4.
This tweet is unavailable
And now here I am. 6 months later.
#ACA approves me. I pick a plan.
This time $228 a month, because my Patreon is at about 1k right now and this plan has a cap.
Figured if they screw me AGAIN on the prescription price copay/knife in the back/coinsurance- there’s a limit.
The day after I celebrate getting my GFM to 80k?
I get a notice that my premium will go up to $847 a month,
because I’m SUDDENLY ineligible for the tax credit they initially approved me for.
And it’s not that my proof was wrong.
This is how they get around helping you, at least in Texas. They say “yes you’re eligible because you’re too poor, send us your proof”
Then you send proof in for the EXACT amount of income you estimated and they &
“Even though it’s the EXACT SAME AMOUNT you’re too poor.”
HOW I AM
BOTH
NOT POOR ENOUGH
AND TOO POOR FOR
THE FUCKING TAX CREDIT
THIS
IS
MAKING
ME
FEEL
LIKE
I
AM TOGGLING
MULTIVERSES.
I have until April 15. So now I have to stop my whole life to argue with these people.
My hopes of re-starting a business dashed. There’s no way I have enough to advertise unless I can afford to create a nonprofit.
I need $3k for that.
I need $2k for my original plan.
And I’m still trying to catch to to the bills I have from not being able to work in February
And get ahead of the bills I won’t be able to pay without proper business until May
when an opportunity I have been waiting for since October MIGHT work out.
Even if that didn’t work I had a plan B
- finish dev ops training and go to this company that already has a job for me.
C- get my merch off the ground.
I of course need at least $3k for all those things. Advertising, verifications, etc
I’m losing my fucking grip. Something better change fast.
Yesterday I had to get out of bed.
Today I forced myself to do the minimum amount of exercise and sit in my recliner instead of my bed.
But I’m broke.
And I feel stage 4 clawing at me. Every day there’s a new clue that the cancer is advancing.
Every night I have to start using my oxygen earlier and earlier.
I cannot get in to see my oncologist until someone cancels.
No other specialists in my type.
So very day I try to raise these kids like my life force isn’t slipping away.
Struggle to work for an hour. All I have to do is produce content (like that’s EASY??)
But all I have is a fury I don’t even have the energy to fuel.
If you can help.
gofund.me/38f7fe5d
I have no idea how to estimate a new goal. I will need another $7k a month not including expense to live through this year.
Just to survive it.
