If anyone sees this, please talk to me. It’s the middle of the night here and I’m losing my fucking mind freaking out about where we’re going to live, losing my garden (my sanity), the last place I had my mum alive… it’s all too much. I can’t take any more.

I know I haven’t been on here in ages. Life is just so completely horrendous. I don’t even know what to say anymore. I’m getting evicted soon and I’m too sick, broke and exhausted for this. I’m tired of fighting to stay alive. Tired of worrying about housing, food, health etc.

The BOM has completely messed up their new website.

Whose idea was it to break the BOM @BOM_au ?? This update is unusable.

#ME Installation in front of the Ministry of Research, Berlin. Body bags depicting the unseen, imprisoned lives in the tiniest, darkest spaces in which ME patients live their half lives. Also a memorial for those that have died from this appallingly neglected illness.

I just saw @andersoncooper on the late show w Stephen Colbert. He was amazing. He’s doing a new podcast on grief. He talks to thousands of people who experience grief. I wish I could talk to him about the unique & profound grief of having my son suffering with MECFS for 15 yrs.

Looking for help for a trans friend. Are any of my followers Trans and have fully transitioned? Please DM me. My friend needs community and is looking for a sense of safety and belonging. I said I would try my best to connect them with anyone I can find in their shoes.

I’m ordering some Well Before KN94 respirators from overseas. I tried one recently and really liked it (Disclaimer: I’d only wear these outdoors or in low risk areas). If anyone else wants to join the order & save on shipping, please let me know. wellbefore.com/pages/build-y…

Tony Blair’s catastrophic decision to invade Iraq cost thousands upon thousands of lives. He shouldn’t be anywhere near the Middle East, let alone Gaza. It is not up to Blair, Trump or Netanyahu to decide the future of Gaza. That is up to the people of Palestine.

Lots of coughing and sniffles going on around you? Stay purr-fectly protected by wearing a mask! 😷🐈 Wearing a high-quality N95 mask protects you from respiratory viruses like flu, COVID-19 and RSV. 📲 Learn more about masking: cdph.ca.gov/Programs/CID/DCD… #StayHealthy #MaskUp

My son recently had a kidney transplant. The nurses know he is classed as "severely immunosuppressed" but they refused to wear masks and said if he gets Covid, we can't PROVE it was from them 😳 We need masks in healthcare. Plz follow the link and vote yes ❤️

Fantastic to see Plum from The Safer Air Project speak at the Healthy Indoor Air: A Global Call to Action event! We are glad we could contribute to ensure this could happen. We are also proud to have signed the Global Pledge for Healthy Indoor Air!

Big Aussie killer no one is talking about. Not a single mention of the virus in unmitigated circulation that is scientifically established to drastically increase the risk of dementia. Too many of us have noticeable brain changes since getting Long C. news.com.au/lifestyle/health…

It’s completely baffles me how people around me are complaining of LC symptoms and when I say “that could be LC” they get worried and tell me I’m smart for protecting myself. Sorry, what….??? They’re worried about ending up Disabled like me but still unwilling to mask. Okay…

Covid is wrecking T-cells in study after study, yet people still act like it’s just a cold. This virus doesn’t care if you “believe” in it, denial doesn’t erase T-cell depletion or immune dysfunction.

LC clinics are turning into gaslighting centers instead of following research.

You’d think the biggest barrier with chronic illness would be the diseases themselves. Nope! Turns out it’s the medical system and the people inside it. Don’t belive me? Here are actual quotes from self identified medical professionals on Reddit, talking about people like me, and it makes my blood boil 😡 “As a peds rheumatologist… I don’t love the hypermobility/AMPS/POTS referrals… I can usually talk them down from the ledge.” “POTS is the new chronic fatigue syndrome, which is the new chronic Lyme, which is the new fibromyalgia.” “It’s the new ‘cool diseases’… some want to wear the POTS/MCAS/EDS badges to draw attention to themselves.” “There’s a subset of patients who ‘collect’ diagnoses… a lot of these diagnoses (like POTS) are just somatiform disorders.” “If this were 1800s Victorian era we could simply prescribe them all vibrators.” “I’ve noticed [hEDS] has become a ‘popular’ (Instagrammable) illness.” “Now the term hEDS is essentially medically meaningless… seeing it on the record is a harbinger the patient will have multiple nonspecific symptoms.” “Honestly, I think it’s bullshit… hEDS is not a genetic disease.” “Said diagnoses invariably come from cash-pay only physicians in solo practice clinics, often in strip malls.” "These chronic illness communities are just that, community. Collecting these diagnoses is a competition for them." "The TikTok quartet MCAS, EDS, POTS , gastroparesis." These are medical professionals. They turn our suffering into punchlines. They think these are all trends. We spend years fighting for answers, to be believed, to get even the bare minimum of care. This isn’t just ignorance, it’s hate. If you’re a doctor reading this. You don’t have to understand these conditions to treat people with respect. No one wants to be sick. But if your first instinct is to mock, dismiss, or run to Reddit to post, you’re not just part of the problem. You are the problem.

Oh look, another QLD cardiology conference that completely fails to acknowledge the impact of Long C on the cardiac and vascular systems, despite it driving an enormous spike in heart issues. They’ll infect each other and spread it to patients too. goldcoastcardiology.au/wp-co…

It’s scary how many people are accepting of and complicit in slow motion Eugenics.

We’re screwed. I wish world leaders would wake up and implement better regulations.