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I, & millions, could really use some good working SARS-CoV-2 antivirals. SARS-CoV-2 reinfects & persists. #LongCOVID #pwLC #AntiviralsNow
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This is Long COVID. There is no better way to describe the unimaginable pain than this photo and caption. Suicide. It tells of the intense and constant pain and terror of the infected. #COVID19 #CovidIsNotOver #LongCOVID #LongCovidAwarenessDay #pwLC #LongCovidTreatmentsNOW
Irish ME/CFS Association retweeted
Also open to patients with post infectious illnesses such as #MECFS that were not #Covid triggered. #PwME #LongCovid #LongCovidKids ##pwLC @TomKindlon
Our next Patient Support Meeting is on Monday, November 10th at 7PM 🗓️ Open to Parents of children with Long Covid, Patients with ME/CFS and those outside Ireland All are welcome 💙 #LongCovid
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Lisa retweeted
Any #pwLC undergone a muscle biopsy? Crowd sourcing experiences before agreeing to participate in study. RTs welcome.
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I am Olive retweeted
🦃🍂November: Nourishing Our Communities🍂🦃 🍂 With SNAP withheld this thread is open to ALL who need help eating 🦃#pwLC & neighbors share your: 📌Food needs 🍎Support links 🥧Wishlists No one should hunger - Solidarity feeds us all #LongCovidAid #MutualAid #SNAPSolidarity
Absolutely, it’s a constant source of pain, expressed by CC & #pwLC frequently on this app. Where is the Covid group you refer to? I’m not on FB…
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Tracey Burgess retweeted
#pwLC #pwME #NEISVoid has anyone been dx with aphasia that was NOT the result of a stroke or brain injury (independent of your LC or ME or IACC)? And does anyone have research on any overlaps between LC/ME and aphasia? @KatBoniface @atranscendedman @renesugar
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Happy to talk, @john_actuary & @NJM71 about how I went from fully capable to totally incapable within a few months. Would give anything to have my life back -> As would around 1M others in the same situation. I've had a good life but very sad for under 30s. Still happening. #pwLC
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das schlimmste ist, das geht nicht einfach vorbei... wie lange könntest du das aushalten? #ME #MECFS #pwLC #pwME #chronischkrank #chronischignoriert #chronischunversorgt #chronischAmArsch
Ich wünschte, die, die denken, ans Bett gebunden sein wäre entspannend, würden verstehen was dies wirklich bedeutet. Abgesehen vom Verlust der Selbstständigkeit, wie sehr man zum Überleben von anderen abhängig wird, wie sehr es das Leben der -> #mecfs #severeme #me #pots #cci
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Karen Hartmann retweeted
ein herzliches #fckyou in Richtung der Verantwortlichen! wenn Games mehr wert sind als Menschenleben... "christlich" ist das nicht! #ME #MECFS #pwLC #pwME #chronischkrank #chronischignoriert #chronischunversorgt #chronischAmArsch
Forschungsgelder für ME/CFS gekürzt Die Versprechen gebrochen Die Gesundheits- und die Forschungs­ministerin lasen Briefe von Betroffenen vor. Jetzt streicht die Regierung Forschungsgelder. Darauf noch ein Brief. „Ich habe nicht den Eindruck, dass Sie verstanden haben, wie …
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Replying to @NotOstriching
Doesn't seem like it. @elonmusk please help! I went all other avenues to try to fix it. I am sure there must be other #pwLC saying this. Take the filter/suppressor off my honest post. And watch it if you get time. 😉
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Replying to @drseanmullen
It’s definitely the strangest experience when I, as a #pwLC, developed multiple life endangering chronic illnesses (including brain injuries from two POTS related concussions) after ONE infection long before vaccines, gets to educate lab techs, RN’s & other medical staff about LC
It's come to this 🙄 Publicly humiliating Tom Hanks on entertainment TV, just for prioritising his health. Accepting the real risk (that 💯 continues) is to 'scary' for many to accept. Audience laughing as per scary scenes in a horror movie, to vent fear / emotion. #pwme #pwLC
What an Idiot. Tom Hanks explains why he’s still masking although it’s been proven many times that they don’t work. “I'm doing a play right now so I cannot get sick...I've had Covid enough in my life…I don't need that again. So I'm wearing this for health reasons…”
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♡𝕹4𝖓𝖆𝖇𝖆♡ retweeted
Can anyone match lucky $13 rec thx to J? $1447’s needed for food, basics $260 by Fri for new ID. #NAHM #PWLC #ShopSmall #Artist #Art mayasdivinedesignstoo.square… #WearableArt legaleriste.com/mayas.divine… #DigitalArt: Ko-Fi mayasdivinedesigns (also P/C/V) Tips linktr.ee/mxmd1